{"id":579437,"date":"2025-01-24T10:58:42","date_gmt":"2025-01-24T09:58:42","guid":{"rendered":"https:\/\/www.wownature.eu\/?post_type=wow-business&#038;p=579437"},"modified":"2026-05-14T18:27:34","modified_gmt":"2026-05-14T16:27:34","slug":"aiaf-associazione-italiana-anderson-fabry","status":"publish","type":"wow-business","link":"https:\/\/www.wownature.eu\/en\/business\/our-partners\/aiaf-associazione-italiana-anderson-fabry\/","title":{"rendered":"AIAF \u2013 Associazione Italiana Anderson-Fabry"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"579437\" class=\"elementor elementor-579437 elementor-564021\" data-elementor-post-type=\"wow-business\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-4a594d71 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"4a594d71\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-1c8a90d0\" data-id=\"1c8a90d0\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2b8c6943 elementor-widget elementor-widget-image\" data-id=\"2b8c6943\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/www.wownature.eu\/wp-content\/uploads\/2025\/01\/aiaf-WOWnature.png\" title=\"\" alt=\"\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-20f7143b elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"20f7143b\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-2cb3b8ea\" data-id=\"2cb3b8ea\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-61c14cb0 elementor-widget elementor-widget-image\" data-id=\"61c14cb0\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"300\" height=\"300\" src=\"https:\/\/www.wownature.eu\/wp-content\/uploads\/2025\/01\/AIAF-300x300.png\" class=\"attachment-medium size-medium wp-image-564035\" alt=\"\" srcset=\"https:\/\/www.wownature.eu\/wp-content\/uploads\/2025\/01\/AIAF-300x300.png 300w, https:\/\/www.wownature.eu\/wp-content\/uploads\/2025\/01\/AIAF-1024x1024.png 1024w, https:\/\/www.wownature.eu\/wp-content\/uploads\/2025\/01\/AIAF-150x150.png 150w, https:\/\/www.wownature.eu\/wp-content\/uploads\/2025\/01\/AIAF-768x768.png 768w, https:\/\/www.wownature.eu\/wp-content\/uploads\/2025\/01\/AIAF-600x600.png 600w, https:\/\/www.wownature.eu\/wp-content\/uploads\/2025\/01\/AIAF-100x100.png 100w, https:\/\/www.wownature.eu\/wp-content\/uploads\/2025\/01\/AIAF.png 1080w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-5df25354 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"5df25354\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-4f6f620e\" data-id=\"4f6f620e\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6f60b799 elementor-widget elementor-widget-heading\" data-id=\"6f60b799\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">AIAF \u2013 Associazione Italiana Anderson-Fabry<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-49fdc1aa elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"49fdc1aa\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-7ef4ded6\" data-id=\"7ef4ded6\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-472833a2 elementor-widget elementor-widget-shortcode\" data-id=\"472833a2\" data-element_type=\"widget\" data-widget_type=\"shortcode.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-shortcode\">    <div class=\"shortcode-container\">\n        <div id=\"profile_activity_api-container-2506\">\n            <img decoding=\"async\" src=\"https:\/\/www.wownature.eu\/wp-content\/themes\/p51-wownature-theme\/assets\/images\/load_1.gif\" style=\"width:60px;margin:auto;display:block;\">\n        <\/div>\n    <\/div>\n\n    <script>\n    document.addEventListener('DOMContentLoaded', function () {\n        if (typeof sendShortcodeAjax === 'function') {\n            sendShortcodeAjax('profile_activity_api', UniversalShortcodeAjax.post_id, '#profile_activity_api-container-2506');\n        } else {\n            console.error(\"sendShortcodeAjax() not found\");\n        }\n    }, false);\n    <\/script>\n    <\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-24ed490b elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"24ed490b\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-9b77a30\" data-id=\"9b77a30\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-56791443 elementor-widget elementor-widget-shortcode\" data-id=\"56791443\" data-element_type=\"widget\" data-widget_type=\"shortcode.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-shortcode\">    <div class=\"shortcode-container\">\n        <div id=\"profile_map_api-container-7519\">\n            <img decoding=\"async\" src=\"https:\/\/www.wownature.eu\/wp-content\/themes\/p51-wownature-theme\/assets\/images\/load_1.gif\" style=\"width:60px;margin:auto;display:block;\">\n        <\/div>\n    <\/div>\n\n    <script>\n    document.addEventListener('DOMContentLoaded', function () {\n        if (typeof sendShortcodeAjax === 'function') {\n            sendShortcodeAjax('profile_map_api', UniversalShortcodeAjax.post_id, '#profile_map_api-container-7519');\n        } else {\n            console.error(\"sendShortcodeAjax() not found\");\n        }\n    }, false);\n    <\/script>\n    <\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-46e159c5 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"46e159c5\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-45083a9e\" data-id=\"45083a9e\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-be5f4f5 elementor-widget elementor-widget-text-editor\" data-id=\"be5f4f5\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>L\u2019Associazione Italiana Anderson-Fabry AIAF APS \u00e8 stata fondata nel 2016 e rappresenta ad oggi l\u2019unica realt\u00e0 associativa nazionale di riferimento per le persone e famiglie con malattia di Anderson-Fabry. AIAF APS non ha fini di lucro e si impegna per dare sostegno e tutela a pazienti e famiglie, affinch\u00e9 non si sentano soli, offrendo supporto nella gestione delle problematiche correlate alla malattia di Fabry in diversi contesti (sociale, psicologico, assistenziale e di tutela legale). Trattandosi di una malattia genetica rara, la diagnosi della malattia di Anderson-Fabry pu\u00f2 arrivare nella vita di una persona come un tornado. Inizialmente pu\u00f2 accadere di provare smarrimento, incertezza e impotenza, ma affrontando con resilienza e consapevolezza la nuova condizione, anche grazie l\u2019aiuto di professionisti sanitari, \u00e8 possibile riorganizzare la propria vita e ritrovare un rinnovato equilibrio.<\/p>\n<p>&nbsp;<\/p>\n<p>Metaforicamente, \u00e8 un po\u2019 come accade ad una foresta, quando viene travolta dall\u2019eccezionale potenza di eventi atmosferici estremi: dopo il forte impatto, con il tempo e con qualche aiuto riesce a rigenerarsi e trasformarsi. Anche traendo spunto da questa metafora, l\u2019associazione AIAF ha promosso il progetto \u201cMy Fabry Tree\u201d, che affronta la tematica della comunicazione della diagnosi all\u2019interno della propria famiglia, e attraverso il quale coinvolger\u00e0 le famiglie e si impegner\u00e0 concretamente a realizzare il \u201cbosco di AIAF\u201d, contribuendo alla riforestazione di due aree italiane, una in Trentino-Alto Adige e una in Sicilia, colpite negli anni scorsi da alcuni eventi naturali avversi. Grazie a questo progetto, ogni pianta messa a dimora sar\u00e0 una speranza per un ecosistema pi\u00f9 sano e resistente.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-50f54d8 elementor-widget elementor-widget-text-editor\" data-id=\"50f54d8\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h5><strong><span style=\"font-family: 'Palatino Linotype', serif;\">Scopri di pi\u00f9 sul progetto My Fabry Tree<\/span><\/strong><\/h5>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-542c636 elementor-widget elementor-widget-button\" data-id=\"542c636\" data-element_type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/www.aiaf-malattiadifabry.org\/notizie\/384-al-via-il-nuovo-progetto-my-fabry-tree.html\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">CLICCA QUI<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-4bd05e34 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"4bd05e34\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-56d8686e\" data-id=\"56d8686e\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-d3919e5 elementor-widget elementor-widget-shortcode\" data-id=\"d3919e5\" data-element_type=\"widget\" data-widget_type=\"shortcode.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-shortcode\">    <div class=\"shortcode-container\">\n        <div id=\"aree_per_azienda_api-container-3614\">\n            <img decoding=\"async\" src=\"https:\/\/www.wownature.eu\/wp-content\/themes\/p51-wownature-theme\/assets\/images\/load_1.gif\" style=\"width:60px;margin:auto;display:block;\">\n        <\/div>\n    <\/div>\n\n    <script>\n    document.addEventListener('DOMContentLoaded', function () {\n        if (typeof sendShortcodeAjax === 'function') {\n            sendShortcodeAjax('aree_per_azienda_api', UniversalShortcodeAjax.post_id, '#aree_per_azienda_api-container-3614');\n        } else {\n            console.error(\"sendShortcodeAjax() not found\");\n        }\n    }, false);\n    <\/script>\n    <\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"featured_media":564035,"parent":20355,"menu_order":0,"template":"elementor_theme","class_list":["post-579437","wow-business","type-wow-business","status-publish","has-post-thumbnail","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - 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